Saturday, May 3, 2008

Ayurveda

At the initial years of my Ankylosing Spondylitis, I was tempted to try alternate treatments like Ayurveda mainly due to the rapid cure of my uncle's Ankylosing Spondylitis. I was advised to undergo navarakizhi followed by vasti.
The fact is that almost for 45 days I was relieved of my pain and stiffness completely. Unfortunately the symptoms of Ankylosing Spondylitis re-surfaced after that period. Though I continued taking ayurvedic medicines almost for a year after that, the symptoms did not subside unlike my uncle's history.
Ayurveda considers each individual as different entity. Unfortunately in my case it did not work. My opinion is that if it is possible to try, go ahead, and if your body responds to it consider yourself lucky as ayurveda doesn't have any side effects.
I did get something out of Ayurveda. I was able to keep my psoriasis under control using an Ayurvedic oil called Dandapala (Scientific name:Wrightia tinctoria)coconut oil. This could be easily made by immersing the leaves in a earthern plate filled with coconut oil and then keeping it in bright sunlight for approximately 3 days. Apply this oil often on the affected areas.

95 comments:

Anonymous said...

For psoriasis, Naturopathy is best. You can try.

Akil A. Gandhi
akilgandhi@rediffmail.com

Anonymous said...

Hey . did you take up exercises of some sort were they helpful?

I am also planning to switch to Ayurveda. Could you tell if you runcle for whom it worked is he still pursuing with Ayurveda?

Also, any idea what was different in your case?
I am pretty nervous going ahead :(

Author said...

The greatest mistake that I did was that i didn't do much exercise. Do swimming. when you dont have active inflammation you can walk as much as you can. Avoid running, jumping or any other activities which can cause flare up of inflammation. My uncle still continues his ayurvedic medication atleast once in a year. Do not stop your Allopathy medicines unless you are sure ayurveda is working. Consistently check your ESR and keep a track of your inflammation. Do exactly as your Rheumetologist advices. Don't stop NSAID's when inflammation is down.
These are some of the things that you have to be very careful

Unknown said...

Hi,

My name is Rajesh Daswani. My number is 9820544069. You seem to have a lot of knowledge on this disease and I have also tried a number of different treatments etc. My disease also commenced when I was 17 years of age. Call me up. Lets exchange notes. Or you can email me on rajesh.tropislex@gmail.com

Unknown said...

You covered exercise, which you are right is very important part of the fight against this disease. But there is something even more important. its DIET. I will try to post some tips on a good DIET which helps CUT DOWN inflamation. I don't believe in NSAID's as they ruin your stomach. But yes, by giving up NSAID you have to fight stiffness and Pain on a daily basis. Yoga and Accupuncture helps a great deal and so does swimming.

CC said...

I have also been dealing with Ankylosing Spondilitis for over 10 years now (since my early 20s) and the only thing that has helped me has been following Ayurvedic guidelines in terms of doing yoga and changing my diet. If you do not change your diet or go back to what you were eating before then your disease will return as poor digestion among other things is what causes it. I hope that helps (of course I'm not a trained Ayurvedic doctor, my advice is to seek one out). It has and is helping me. I have been off of NSAIDs for over two years now and am still improving.

Take care

Unknown said...

hi I am also suffring AS from age of 15 year of age i am 28 year old now. my AS is detected 2 years back I am having pain in buttock and stiffness in back i have taken alopathy treatment for 1 year now i am taking ayurveda treatment from last 6 months and its effect is quite ok even after stoping pain killer like sulfasalazine and powergesic I can do my day to day activity As for excercise i do it occasionaly and find it effective . I Donot know if it will affect my married life feature after geting married . please share your result of married life with AS
thanks
swapnil patil

Unknown said...

hi swapnil

you can get married, but its important you tell ur partner how bad it can get.. so that the person doesn't feel cheated later..

sulfasalazine is not a pain killer. it is a disease modifying drug.

allopathy can only give u pain killers like Muvera, brufen etc which can give temporary relief

i suggest the following program

a)Exercise/swimming/physiotherapy and yoga
b)Accupuncture/ayurveda
c)Diet

Please read up as much you can online and try to watch ur self to see what suits u best

all the best with ur fight against the disease.

Rajesh said...

Hi,

I am originally from India but currently living in USA. I was diagnosed with Ankylosing Spondylytis last year in Oct. Doctor found that my HLA-B27 was positive and I had been getting back for over an year. I have been taking Embrel injection for almost 10 months now. Recently, my left eye became red and doctor told me that I have UVEitis. They have given me some eye drops.

Did any one also get red eye? If yes, then what did you do?

Can you also share what changes you had to do in your diet to keep AS away?

RAVINDRA AMBEKAR said...

राजेश,
आँखे लाल होना स्पॉन्डीलाइटीस में आम बात हैं.. मैं पिछले एक साल में दो बार इसका शिकार हो चुका हूँ।
इसे प्रोटीन एटैक के तौर पर भी माना जाता हैं..। रेग्यूलर चेक अप करते रहना.. आँखे लाल होते ही 12 घंटे के अंदर डॉक्टर से मिलना..ज्यादा समय लोगे तो रैटीना डैमेज हो सकता हैं..।

Unknown said...

well thats true.. we have to actively watch ourselves. Red eye is common but if you are taking enbrel then i wonder why the disease is still active in the body ?

Dr Aravind T.V said...

Hello everybody

I am Ayurveda doctor.

I have read all your advise, worries, questions etc on ankylosing spondylities.
For details of this disease and management in Ayurveda visit my blog ayurdharshini.blogspot.com

Anonymous said...

you visit this center for curing your problem

'CHARAKA - THE SPECIALITY AYURVEDA'
Institute of Panchakarma & Research
1-8-49/1, Krishna nagar colony (lane beside Food world),
P G Road, Secunderabad, Andhra Pradesh, INDIA-500003.
Phones: +914027896644, +914066329888, +919849015400
E-mail: info@charaka.org
Web: http://www.charaka.org

Anonymous said...

Hi,my aunt is suffering from the AS and her condition is very very painful. Her condition has worsened since 1 year. I have taken her to many doctors but did not any good result. her mobility is almost stopped. At present she has lost all her hopes and is now under depression which is aggravating her situation more.
Her neck is completely stiff, her spine pains a lot, right leg is cannot be straighten and movement is almost nil. Please suggest how to go about Ayurveda and where and I want something really fast as it is very painful me to watch her aggravating her situation.

Asad said...

Hi I am suffering AS since 1996. Now I am sick of taking tradional medicine and now I am facing side effects. So i want to move in Ayurvedic treatment. Can anybody give me a address of Ayurvedic medicine or hospital address where I can go. I really need one. u can contact me asad2803@gmail.com

drkishore said...

hi to all.. am a doctor( MD pathology,PGIMER CHANDIGARH),indeed i had my first attack of sacroilietis during my final year MBBS times.. did the entire arthritic profile and found to be HLAB27 positive.. took bridging theraphy with NSAIDS,STEROIDS AND SULFA then got some relief i discontinued the medications and started coping up stiffness and pain by being more active in work/day today activities.. still used to get attack at times.. after an extensive search on research papers many improvements have come in this field.. but let it be any kind of medication system the basic components are analgesics and give short term relief only.. the success stories quoted may be cases of reactive arthritis in whom the disease follows a variable course from time to time only 1% of b27 positive people get AS so some strong predisposing factor may be other genetic factors or environmental(like klebsiella a kind of gut bacteria ) can predispose to disease development

first never lose courage this increases your pain....
whenever i have rest pain i feel god wants me not to take rest indulge yourself in some activities
swimming is a wonderful exercise that can do magic try it..
rest take some medications to combat acute episodes.. since am not an ayurvedic doctor i cant comment on those drugs.... i my experience with kidney biopsies i have seen premature renal failure in some people on desi medications so be careful get away from quacks lets fight AS its possible more than a curse its a blessing in disguise.... jai hind

Anonymous said...

Hi!

My husband has AS and little did i know how bad the disease is till we got married and stayed together as husband and wife. He told me before we got married that he has mild back pain and i had no idea about AS. I don't want to think i was cheated because i loved him anyway but i think it is important for anyone who has the disease to confess before marriage as part of honesty. Being a Filipina who got married to an Indian who has AS, I'm determined to support my husband as much as I can, now doing my research that may help.

Asad said...

Hi anonymous,
I appreciate for the support that you do for your husband. On the otherhand AS is not such a disease that will cuase your life hell. By doing proper medication and exercise AS patient will lead life properly.

Anonymous said...

i am havin AS since 5 yrs ,,, nothing worked ..and finally i underwent NADI PANCHKARMA ...
the only place where they do it is
Parley Ayurved Center
3/4 , Gautam Ashish Building , S.V. Road , V.M. Road Junction , Vile Parle (WEST) , Mumbai - 400056.
No : +91 - 022 - 6525 0237 / 2620 8511

Anonymous said...

Hi Anonymous, as you mentioned about Parle Ayurved Centre, vile parle, did the treatment help you...i tried calling up the numbers that you wrote, no one picks up the phone...please help ...
regards
Manoj
manojsharman@rediffmail.com

pavan jhawar said...

Hi,
I am frm Hyderabad and suffering with AS since 15yrs. Right now my age is 28. Guys please suggest me if u have got cured from this AS with any kind of medication. It really kills me when i saw ppl walk around me. I lose confidence in me. Cant say here what hell it is for me. I am doing some physio therapy. I tried doing swimming but unable to do. My shoulders also got affected and i cant move them quickly as we do while swimming. Pls Pls i request u do suggest me any place where i can get cured.

Thanks,
Pavan Jhawar.

Anonymous said...

Hi Pavan,

First of all, do not be discouraged nor loose your hope..............We are fighting our battle just like every other human on this earth is doing, the only difference being - Name of the battle is different.

Even I am suffering from AS for last 8 years and already am walking on walker. Pain - 24 hrs a day. Stiffness - more or less the same as like you. New developments in disease state - definately positive. So what is the good news - " Life is Beautiful". Pavan, this is our life and you can decrease the pain by "acceptance" or worsen it by "refusing to accept" and thus increasing your mental stress. Refusing to accpet it worsens our state. When you are down with - say - fever, do you not accept that your body temp has increased and you take appropriate steps to bring it back to normal. Same is the case here - accept that you have AS and you need to make yourself comfortable.

Engage in things that you like to and are capable of doing. Do not overstress yourself, mentally as well as physically. when body demands rest, give it. Still to keep the muscles functioning, you will have to do routine excercises. Instead of having pain 24 hrs, complete your exercise discipline and suffer for an hr or so, but you will have better part of the day with less pain and stiffness.

Also, check out www.zerotherapy.com. It did help me a lot.

AS being a type of autoimmune disease, our immunity becomes very weak during the progression of this disease. So, keep doing atleast 30 mins of Pranayam and Kapalabhati and you should be fine.

As for the stiffness, when it is more I use hot almond (soaked for min 5hrs and skinned)and rice kheer for lunch, it helps. This especially happens when we take head bath. As much as possible try to keep your spinal cord warm, meaning do not sleep on cold floor (avoid sleeping down, use cot), avoid ice-creams, cold drinks, jackfruit, melon, coffee (very harmful, non-veg, ...............I mean, I have identifed these things as causing the gas levels to increase in my body further resulting into increased inflammation. Also, masoor and blackpepper, especially powdered one. So, make a list of your daily food intake, and very soon you will know what to eat and what not to.

Rest, believe in God. There is nothing like feeling Him next to you and getting his help whenever you ask for it.Nothing is uncurable...........Just tiem has to be right.

Best of luck to all there, and May God bless all of us.

pavan jhawar said...

Thanks Anonymous.. U r true. We have to accept the fact that we have AS. And just do a little extra work than a normal human being(therapy, exercises) and leave rest to God. That s all. And one more to add the list of food not to be taken given by u is Milk Products. My doctor suggested not to take any milk products as it takes time to get digested and results in Gas formation. For AS patients, daily intake plays the major role. Avoid food which ever takes lot of time in getting digested. I am now undergoing a massage therapy and feeling little better than other days but right now i cant tell u how much it is helpful. But i will diffinitly update here if i find any improvement after the therapy. Please friends do continue posting if there is any development or worse situation so that we can prepare our self to that level too.:(
Wish u all a very best of luck. take care.:)

Anonymous said...

Friends this is sanjay here.

I am also suffering from AS and got a killing pain in my lower back and there is swelling in my foot,which has putten me on bed.I am not sure about ayurveda but homeopathy can be good option here it helps

sonia said...

hi all. i am suffering from past 13 yrs and have got relieved using accupressure. its very good and relieves u from the pain.

Asad said...

@ Sonia
Can you please tell me the location details where you did accupressure? I want to go there.

Anonymous said...

Hii,
I am 20 year old and I am suffering from AS from 17.After taking treatment for 4 mnths i did'nt have much problem till last year. First my hip started to pain as in past after that I got swelling in my left knee for 3 months.I am taking ayurvedic medicine from past 8 months and also started taking allpathy now. The main problem is I am in merchant navy and my disease is at begining stage so I dont have problem with my medicals.
Just I am nervous about my future. What to do and what not to do??
Now I am doing Yoga for 1 to 2 hrs dailiy from past 5 months. It has helped but still slight pain is there in my hip.
Also I am fine now by reading that yaa I am not alone suffering there are people like me and it has give me motivation to fight.
The main problem with ayurveda is medicine dont act fast but for future its good.
Can any one help me about homopathy thats the last thing remaing to try is there any good doctor available for homopathy plzz suggest.

Anonymous said...

@ Pawan Jawahar,

I am not much convinced about milk and milk products. My experience is - if our immunity is strong enough, pains are less. Check you Hb routinely along with ESR. I take vit suppliments as my Hb is always on lower side. As for milk products, they are definately needed for strength of bones. Guess in our case, rarification of bones is another one thing we need to keep check on. So think about this. As for complex food items which take some time to digest - i agree with you.

@Anonymous - Nov 27.

Don't worry much. This will put unnecessary stress on your system. Just take life one day at a time and fearlessly go ahead and enjoy it. Time will always tell you whats in store. Let it do its work.

I know, at this age things are not clear. Lot of fear, lot of questions, lot of distrust. But, my experience says "if you believe in victory, victory will believe back in you". You will be fine and you will find your way.

May God bless all of us.

Author said...

I've come accross various suggestions and advices during my 15 years of AS maintanance. At present there are no finite medicines in any stream of health care. The only thing that works is exercise. Along with proper medication exercise will do miracles. Try swimming. Dont fall for any advice.. Keep yourself busy. Dont sit idle.. do exercise daily. Swim if possible and keep away from stress. Try to live a painless life.

Anonymous said...

Hellow Every one,
Rheumatism can only be cured completely with ayurveda and no other medicine can help except.
My Mom was having rhumathoid arthritis She showed it to many allopathy dr they told it can be cannot be cured. But in 6 months of ayurveda she became all well till now.
I am suffering from Ankylosing and I am taking these treatment from same dr from past one year but not that improvement but still I have to give few more years Because still there is no loose is taking these treatment.
Let the dr be given more time as it is the oldest meditation in history.
God bless all of us

Anonymous said...

Ayurveda has cured me to a large extent. It mostly depends on your dr.
My dr is p.hd in ayurveda. He has told that within 3 months all will be fine. I am taking these medicine from Jan 2011 when I suufered a lot pain and swelling for 4 months.
Now I am living without painkillers, Saaz DS tablets and steriods.
It would be my pleasure to help you in any ways. My contact no is 8108978147 or if not available mail me at sarango333@gmail.com

Siddharth said...

Hi ALL,

I was diagnosed with Ank spon back in 2006 .. I took homeopathic treatment for a couple years which only provided symptomatic relief. Over the years, I have stayed active by playing sports, gymming and eating as healthy as I can.

After a number of referrals from my friends and parents Starting tomorrow 17th March 2012, I will be starting an Ayurvedic Treatment called "Panchakarma". It is a 45 days detoxification treatment and the doctor has taken 99 percent guarantee of curing me of Anky Spon.

In the past, he has cured my mother of migraine, and my dad of glaucoma, chronic allergies and stomach problems as well, all through Panchakarma.

That is why I am going for this Panchakarma treatment. I will be in touch with you all and hopefully eventually we all could benefit from it.

Thanks,

Sid

Anonymous said...

Hi ALL,

I was diagnosed with Ank spon back in 2006 .. I took homeopathic treatment for a couple years which only provided symptomatic relief. Over the years, I have stayed active by playing sports, gymming and eating as healthy as I can.

After a number of referrals from my friends and parents Starting tomorrow 17th March 2012, I will be starting an Ayurvedic Treatment called "Panchakarma". It is a 45 days detoxification treatment and the doctor has taken 99 percent guarantee of curing me of Anky Spon.

In the past, he has cured my mother of migraine, and my dad of glaucoma, chronic allergies and stomach problems as well, all through Panchakarma.

That is why I am going for this Panchakarma treatment. I will be in touch with you all and hopefully eventually we all could benefit from it.

Thanks,

Sid

Anonymous said...

Hi There,

Check this

http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html

I am trying this. 2 weeks of wheat free diet. Its hard given wheat being our staple food but I am going to try it.

amit dubey said...

Hi all,

I have been suffering with Ankylosing Spondylitis for over 5 years now. I was advised to take a few NSAIDS in the beggining which helped in relieving in the pain. After two-three months, I myself stopped taking any medicine and only depended on exercises. It worked for a while but not completely. Last year, I took three doses(six vials) of Remicade which really proved very beneficial. All the stiffness and pain was gone but the impact lasted for six months only. Now, I really want to go the ayurvedic way. I am currently staying in New Delhi. Kindly recommend me any good Ayurvedic doctors in Delhi-NCR region which provided successful treatment or provided relief.

Many thanks.

God bless all of us.

Unknown said...

my brother has AS from last one year....believe it or not but AS cab be treated with ayurveda. his treatment is underway in india in a small town called shoranur in south. the vaidhya is genius. worth trying. yes naturopathy is also good but its imp ur doc should be good. his name is vasu and not commercial doc. for details mail me motwani.che@gmail.com

with my brothers pain i can feel u all guys are going with.

Anonymous said...

Please help me. I'm suffering for the last two years. Now treating allopathic.

Neha said...

Hi all,
My husband is suffering from AS. I want to start his ayurvedic treatment. Please tell me of any good ayurvedic clinic for this in hyderabad.

Neha said...

Dear All,

I have been diagnosed with AS around 3 months back. It started with a chest pain and inflammation and I went to a cardiologist and then gastroentrologist, and then pulmonologist and then rheumatologist! phew! after getting a bone scan done the Rheumatologist confirmed that it was AS. I am allergic to pan-d so sulphasalazine has side effects on me and my stomach goes upset often.

My question is around the symptoms of AS. Did anyone feel pain primarily in the middle of the chest till the neck area and left shoulder in AS? My Vitamin D level was also extremely low and am on medication for the same..

Dr. Shridhar Aggarwal said...

Dear Author,
This is Dr. Shridhar Aggarwal
I have around 20 experience in treating Ankylosing Spondilitis.
Without seeing u ur pulse & ur vitiated doshas, I can tell u a marvelous remedy for ankylosing spondilits which help u a lot. Mix equal quantities of AVIPATIKAR & AJMODADI CHURAN. Take 1tsf with warm water after every meal. See the results in a weak.
For more info u can be in touch at dr.shridhar@ayurveda24.co.in or at +91 8699017567

Dr. Shridhar Aggarwal said...

U Have to take care of ur diet alongwith. Dont take heavy food rely on dalia khichdi & sleep well to get rid of this.

Healthinfo said...

Great sir you found a great product.
Online Ayurvedic Pain Relief

Anonymous said...

Hi, I am diagnosed with AS since last 4 years. I used to have pains in my left hip joint which gradually expanded to my right hip joints. Doctors advised me MRI & it detected scacroilitis. HLA B27 was +ve & doctors concluded it is AS.
I have been taking NSID (Etric 90) since last 3 years but the pain does not go away fully. Recently I have also noticed tenderness in my spine & it gives me feeling that the disease is now progressing.
Find difficult to walk straight many times.
I am thinking of going for Ayurveda treatment. Can somebody suggest any good & proven Ayurveda clinic in Pune?
Also what diet restrictions / food to be avoided? Pls advise.
Will be greatful.

Thanks,

Unknown said...

HI,Anonymous.. I am diagnosed with AS since july 2013.After october 2013 i have started Ayurvedic treatment in Dr.Samir Jamadagni's clinic.Sadashiv peth,pune.During this period proper ayurvedic medicine,Panchakarma setting and proper diet,now i m feeling better almost 80% cure.My treatment is going on. AS takes almost 1 year ayurvedic treatment for complete cyre.

Unknown said...

22Iam Rajesh, Diagonised as AS around 2 years back. Initially I tried Ayurveda then allopathy. I even had remicade injection which gave me severe allergy. Around 6 months back I started treatment with Swami Nirmalanandagiri of Shornur,kerala,Ayurveda practisioner and now iam able to all my normal activities. I advise AS patients to consult him so that you can live a normal life. Swamiji give importance to what you eat and what to avoid. Avoid red chilly, oil, curd, non-veg food,urad dal etc. Ayurveda medicines comprise of 1.Amrutharishtam 15ml with 1 vettumaran gulika (thrice daily) 2. Gandharvahastadi kwath 15ml with 1 agrikumara rasa gulika (thrice.daily) 2. Shaddhaana choornam 5gm(thrice daily) All before food and partharishtam 15ml with 1 dhanwantaram gulika after food (thrice daily). My severe iritis of 4 years were completely cured by swamiji with Amruthakshi choornam 5mg with mahathriphala gritam. Iam giving all these details because I knew the pain and suffering of this disease. According to swamiji As is completely curable and there is no need to worry. Swamiji has consultatation in trivandrum and ernakulam. His main ashram address is as follows: Karuna foundation, paliyilmadam, kayarumpara, palappuram.p.o, Ottappalam, Kerala. tel:- 04662247144. Panmana Ashram kollam tel; 04762670930, 0476 2671830. You can watch swamiji on Kairali tv sunday morning 7 am show arogyajeevam.My mail id rajeshsv72@gmail.com.

Unknown said...

22Iam Rajesh, Diagonised as AS around 2 years back. Initially I tried Ayurveda then allopathy. I even had remicade injection which gave me severe allergy. Around 6 months back I started treatment with Swami Nirmalanandagiri of Shornur,kerala,Ayurveda practisioner and now iam able to all my normal activities. I advise AS patients to consult him so that you can live a normal life. Swamiji give importance to what you eat and what to avoid. Avoid red chilly, oil, curd, non-veg food,urad dal etc. Ayurveda medicines comprise of 1.Amrutharishtam 15ml with 1 vettumaran gulika (thrice daily) 2. Gandharvahastadi kwath 15ml with 1 agrikumara rasa gulika (thrice.daily) 2. Shaddhaana choornam 5gm(thrice daily) All before food and partharishtam 15ml with 1 dhanwantaram gulika after food (thrice daily). My severe iritis of 4 years were completely cured by swamiji with Amruthakshi choornam 5mg with mahathriphala gritam. Iam giving all these details because I knew the pain and suffering of this disease. According to swamiji As is completely curable and there is no need to worry. Swamiji has consultatation in trivandrum and ernakulam. His main ashram address is as follows: Karuna foundation, paliyilmadam, kayarumpara, palappuram.p.o, Ottappalam, Kerala. tel:- 04662247144. Panmana Ashram kollam tel; 04762670930, 0476 2671830. You can watch swamiji on Kairali tv sunday morning 7 am show arogyajeevam.My mail id rajeshsv72@gmail.com.

Unknown said...

22Iam Rajesh, Diagonised as AS around 2 years back. Initially I tried Ayurveda then allopathy. I even had remicade injection which gave me severe allergy. Around 6 months back I started treatment with Swami Nirmalanandagiri of Shornur,kerala,Ayurveda practisioner and now iam able to all my normal activities. I advise AS patients to consult him so that you can live a normal life. Swamiji give importance to what you eat and what to avoid. Avoid red chilly, oil, curd, non-veg food,urad dal etc. Ayurveda medicines comprise of 1.Amrutharishtam 15ml with 1 vettumaran gulika (thrice daily) 2. Gandharvahastadi kwath 15ml with 1 agrikumara rasa gulika (thrice.daily) 2. Shaddhaana choornam 5gm(thrice daily) All before food and partharishtam 15ml with 1 dhanwantaram gulika after food (thrice daily). My severe iritis of 4 years were completely cured by swamiji with Amruthakshi choornam 5mg with mahathriphala gritam. Iam giving all these details because I knew the pain and suffering of this disease. According to swamiji As is completely curable and there is no need to worry. Swamiji has consultatation in trivandrum and ernakulam. His main ashram address is as follows: Karuna foundation, paliyilmadam, kayarumpara, palappuram.p.o, Ottappalam, Kerala. tel:- 04662247144. Panmana Ashram kollam tel; 04762670930, 0476 2671830. You can watch swamiji on Kairali tv sunday morning 7 am show arogyajeevam.My mail id rajeshsv72@gmail.com.

Anonymous said...

Hello Guys,
I am also one of you..I am 26 years old and AS patient since last 2 years.AS was detected in Jan 2012. I was troubled with lower back pain and rib pain.
I started allopathic medicines (Pain killers + Steroids). I faced lot of complications(Hair loss,kidney and liver related problem) because of these allopathy medicines.

Guys please please do not go for Allopathic medicines for AS treatment.

I have started Ayurvedic Treatment in pune.Ayurveda has great medicines for AS.
Along with medicines, we have to take care of our diet too.

Please do not eat : Potato,Beans,cabbage, cauliflower,Food prepared from Besan Aata.

Eat light food which is easy to digest, Moong dal khichadi is the best food.

My ayurvedic treatment includes : Snehan (Massage), Swedan(Steam),Basti.
my pain has reduced a lot because of ayurvedic treatment+Diet control+swimming.


Take care guys.

maggie.danhakl@healthline.com said...

Hi,

Healthline just designed a virtual guide of the effects of ankylosing spondylitis on the body. You can see the infographic here: http://www.healthline.com/health/ankylosing-spondylitis/effects-on-body

This is valuable med-reviewed information that can help a person understand how AS will affect their body. I thought this would be of interest to your audience, and I’m writing to see if you would include this as a resource on your page: http://myankylosingspondylitisexperience.blogspot.com/2008/05/ayurveda.html

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Thanks so much for taking the time to review. Please let me know your thoughts and if I can answer any questions for you.

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p: 415-281-3124 f: 415-281-3199

Healthline • The Power of Intelligent Health
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pradnyaa said...

I'm 37, a woman. AS was diagnosed 4 years back but I keep getting 'red eye' - iritis since about 10 years.

The things that have helped me in dealing with AS are -

Avoid wheat. Eat rice.
If you can get hand pounded rice, its even better.

Eat light, only when hungry and only things you can digest well.

Use of mild laxative [constipation must be avoided at any cost]

It helps me if I skip dinner or have a light and early dinner

Calcium and D3 supplements

B12 supplements help greatly when the pain/attack is just started.
In an active attack I take two or three tablets twice or thrice a day and it helps.

For both the above I take Amway Nutrilite supplements - Cal mag D and Natural B.

I tried Panchakarma, but it only helped when used along with the supplements + diet

The thing that definitely works is being physically active. I walk, have joined Bharatnatyam class and do some other easy exercise. Kapalbhati too helps, if done regularly for long time - almost 30 minutes every morning.
If I'm not active for a week or so, the pain and stiffness starts.

Meditation helps keep calm, as panic and depression increases pain and duration. I practice Vipassana [www.dhamma.org]

Hope this helps.

Anonymous said...

@ Sonia can you pls share accupressure address.

Unknown said...

nice article… simple and useful :)

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Unknown said...

Dont take enbrel now.. as it will destroy your eyes.. take remicade with acknowledgment of your rheumatologist... i too suffered with the same.. for almost 3 months i was blind with my 1 eye... this is caused by enbrel but it is now being past 4 years.. my eyes is fine and no issues with it.. by the way.. u may also contact me and exchange our veiws regarding this disease.. ankit : 9811045085

Unknown said...

Contact me.will heal u out.8459400000

krisna said...

Hello friends!

Onset of disease occurred at early age 16 (2000) and diagnosed on Oct 2005.

I found a very strange homeopathic treatment for arthritis including AS. Here Dr. suggests patient to completely stop physiotherapy & exercises! Since allopathic route (treatment since 2005) didn’t stop disease progression I approached this homeopath in Kolkata. I am continuing their treatment since Mar 2012 and yet lying in bed since 4 years.

Till Apr 2013, pain and stiffness over back and neck disappeared so I was very hopeful for the same result in hip joints too. Unfortunately, it didn’t happened and in May 2014 there was complete ankylosis of Rt. Hip. Surprisingly, since Sep 2014 rigidity in low back begins to persist and since May 2015 stiffness in upper back and sides of back also persisting. Since Dec 2015 stiffness in neck is persisting too. All these complaints over back and neck were disappeared until May 2014 (i.e. for 1 year) just by taking homeopathy and noteworthy point is that without doing any exercises. However, since Sep 2014 complaints are deteriorating in a new way. So I am totally confused either to continue or discontinue treatment?

Homeopath’s argument is that when allopathic drugs are running, homeopathic medicines don’t work to their full potential. Since I could not discontinue allopathic drugs in 2012 due to its unbearable withdrawal effect, my case responded very slow and ultimately no beneficial!

Nevertheless, lately, I had discontinued all drug therapy dated 1st Aug 2015 (MTX..10mg) & 15th Oct 2015 (SAZO….2g). Currently I’m taking only 1 dose of ACECLOFENAC (pain killer...100mg) at night.

Hence, kindly let me know if anybody has tried this kind of homeopathy where Dr. assures complete cure of Arthritis without doing any exercises?

Anonymous said...

Hi Krishna,

First I would like to appreciate you for the fight you have put through in all these years.

I would like to share my experience - I have been gifted with AS from age 23 and am now 35. Long story short, 13 yrs is long enough to try all forms of medical and non-medical miracle systems to conclude that this is uncurable. Word might hit hard, sorry about that, but I think its just a word, and cannot cause any more pain that what we are already going through. :). So, allopathy, homeopathy, ayurveda, naturopathy, accupuncture, accupressure, any other pathy that I missed - etc etc should be included - everything is only for pain management and cannot basically help beyond certain point. The only thing that helps is your will power and going against the pain and remaining active. AS made me crooked (I have bent totally at hip and to some extent at knee joint) but strong. Yes. I live life to fullest, cry once in a while in open and sometimes in dark. Last 2 years I have stopped all types of therapies - I was doing acupuncture for almost 5 yrs before that - and prognosis is not great but life is great. I had the red eye (almost lost the vision - Doc says 98% was gone - but survived. Doc used corticosteroids for 6 months to get the eye straight, and the steroids gifted me with cataract in both the eyes and fistula. Today - no cataract in both eyes due to acupuncture and Fistula is also ok due to good food habits). Current problem from last May 2015 is cervical spondilytis - due to the posture. I bend and walk so the neck is in unnatural position leading to pain. I didn't go to any doc, just use some local relief oils and ointments and once in a while pain killer. So Man, get up - don't lie in the bed. Do not do any more research on AS treatment. No pain killers. Stop those first. Stay active. Rest for a while when needed. Engage your mind and body to learn new things. Did I tell you I go for a job. People sometimes stare, best part is I cannot see their face - I can only feel their sympathetic eyes boring into my skin - and all times they help. Yes, I work. It pains to walk the long corridors of office. To sit for long times in chair. No friends - as I dont go out with them. but nonetheless its great to have made a life with choice. And never trust Doc who says its ok if you do not exercise - exercise is MUST for normal healthy muscle, ours is gifted - so its DOUBLE TROUBLE for us. Eat healthy, Pray (very very important) and Love (TONS - first love yourself).

Praying - Go beyond yourself and AS and pray.

Last but not the least - Be blessed. Bye for now.

Anonymous said...

Hi All,

Has anyone reported Aphasia? http://www.ehealthme.com/cs/ankylosing+spondylitis/aphasia

Any shares are appreciated.

kkg said...

My no is 9719020573. What is yours. Plz sms

Anonymous said...

Hi - I think I am seeing the symptoms in me. Watching it out.....

vijay said...

At age 40, sudden back pain started. Till that time i never had any back pain, no medicine, no balm in my life. 1jan15 started, i dignosed hla b27+, in these 1.5 years, i have done 4 detailed stir mri, ct scan, xrays but no inflammation found yet. Done blood test 7 times esr never went above 10 and recent waz 3 only, crp max. 1.2 , but i feel my all my bones breaking. Rhummy says no AS other says u have AS. Fyi my spine is straight but no fusion. Pain is lot i cannot move, bend, raise hand, walk, pick 1kg but all reports normal, allvitamins normal hg 16.9 esr 3 and crp 1.2. No thyroid, sugar, lever, kidney disease. Anyone know good doctor in pune. Thank you

Unknown said...

Please see Dr Arvind Chopra. He is the best Rheumy in Pune
Ph : 2635 5204

1988, Hermes Doctor House, Convent Street, Opposite Kumar Corner, Pune, Maharashtra 411001

vijay said...

Thanks Unknown for sharing details. I just called Dr. Chopra, his assistance said that if u r new patient then it is entire day consultation procedure and cost is approx. Rs. 11,000/-. :-(

Unknown said...

Hi Vijay

My name is Rajesh. Dr Chopra's assistant must have said 1100 and not 11000. you made a mistake. and not full day, it will take half a day cos Mr Chopra does all tests in his lab and then evaluates. But he is a good and experienced doctor

vijay said...

Thanks Mr. Rajesh for clarification. I already have done all tests many times, blood test, mri, ctscan, bonescan, xray etc etc. No test remaining. Even in blood i tested hemogram ,esr,crp,ra,sgpt ,cpk,ccpa,sugar, thyroid, uric acid etc and many times. I will carry all those reports .

vijay said...

There is no person named Rajesh in hospital, just receptionist confirmed. She also confirmed that i may need 10 to 11 thousands rupee while visiting. She is very rude, said must be there till 8am in morning as it takes entire day, when i said i will hv to drop my kids at my brother home, she said thencome before 7 in morning.
Mr. Rajesh, i posted here because i am in very pain and partially disabled and thinking that i will get some help. I dont know who are you but its not good to reply with false information like u r working there, fees etc. I know how much in pain i am and how my kids and family suffering with this.

Unknown said...

Hi Vijay,

1)I never said I work in any hospital

2)I have Ank Spond from the past 22 years

3)I have personally visited this doctor 2 years ago and at that time his fees were Rs 800 + tests which didn't go over Rs 3000. When you said Rs 11,000 I presumed you were referring to his fees, and hence I said maybe it is 1100. Also I am certain in 3 years the total charges can't increase by 3 times ?

4)I have studied this disease and lived it for 22 years and hence I am very well aware of how it affects our lives and the pain we go through.

5)You asked for a doc in Pune and as far as I know he is one of the best Rheumy's in Pune.

I have just recommended and given information based on my past experience. There is no need to over react if the details you got were different etc.

All the best

vijay said...

Sorry Rajesh, i read ur comment as u r dr arvind assistance, mistaken due to missing comma in ur sentence and i ignored fullstop after your name.

I am really sorry for that misunderstanding and whatever i said.

Thanks for referring me doctor. I am very frustrated due to pain but i can understand your situation as well.

Sorry again friend.

vijay said...

Hi, sorry to hear about your condition. Hla b27 doesnt mean AS. It is found in many people. Have u done mri, esr.ra,crp tests?
D3 and b12 deficiency can make muscles weak and other problem.0

Please let me know what doc says. You can also visit dr. Pravin patil in aditya birla. I found him good. First confirm that you have AS.

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vijay said...

I visited dr. Arvind Chopra. He asked to do all tests which i already done a week ago, spent 8000 rs. on tests and 1750 is consultation charges and when doctor came he was very hurry.
He didnt allow me talk and concluded i need phychastric. I cry with pain, not able to walk, sit, sleep, my whole body parts are swollen. I left job a year ago due to this. He given me pain killers and asked to repeat same blood test again after a week.
After spending rs. 10000 there i got few pain killers and acidity tablets, and stamp that i need mental treatment.

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krisna said...

Tx 4 sharing ur own experience! Actually, Dr. restrict to do any physiotherapy. I am still continuing his treatment because pain & stiffness throughout the body has reduced significantly. Tragedy is his medicines could not defeat withdrawal effect (WE) of sulfasalazine (SSZ). Since SSZ works only in hip joints,WE is also persisting in hip joints only. That's why I am unable to walk without crutches. Ortho surgeon has suggested me hip replacement & Rheumatologist Biologic + surgery!

What would be quality of life after doing hip replacement? Do biologic really helps to stop disease progression? Has any1 experience??

My homeopath says his medicines will be able to cure deformities in hip joints too. But it will take much time (may be 1 or 2 years more!). He don't suggest surgery.

However, I am not being able to continue patience & want to deal normal life at the soonest.

vijay said...

Ankit , have u posted question on lybrate?

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vijay said...

~~~~~~~~~~~Please remember HLA-B27+ and back pain doesn't always mean that you have AS or SPA.

****There are many idiot doctors, who ruin patients life due to their less knowledge, over confidence and ego.

****AS means inflamation, inflamation, inflamation. Unless you see it on MRI, AS is not confirm. To confirm it as SPA, here is criteria.

http://www.rheumtutor.com/wp-content/uploads/2012/08/ASAS-Criteria-for-Axial-SpA6.jpg

You can search always for "modified criteria for seronegative ankylosing" etc.

ALWAYS go to rheumotogy doctors, they know how to dignose very well, take second opinion too.

Many doctors still think that HLA-B27+ with back pain means always Ankylosing Spondylities (AS), Which is not always true.

Make sure that you get diagnose correctly and treated properly.

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Unknown said...

Hello, I'm also suffering from reactive arthritis(hla b27 positive) since I'm also in merchant Navy can you please tell me that did you face any problem while joining ship.since it's a chronic disease. I asked to some dg approved Dr and they said it's very difficult for you and told to change the career.
Plz help

abhi.panchpal@gmail.com
8754559279
9834926853

Unknown said...

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Unknown said...

Hello Sir, I am 37 and recently in a blood test it revealed HLA B27 positive. I had a bout of pain in my hip joint in 1998 for about a couple of months. After that it was mostly resided and in the past 6 yrs or so I have hardly about 3 attacks and that too only for 1 day after taking normal painkiller. I had upper body aches throught but never really any pain in the lumbar region in the last 20 yrs. my question to you is does Hla b27 mean you have AS? I have a cousin brother who have AS. I have full mobility and normal flexibility. Can you guide me further on this. What is the way forward? I also will like the support of the AS community in facing the disease bravely. I have normal C Rp levels. The ESR test is awaited. Looking to go to a Rheumatologist for the first time next saturday. I stay in delhi. Looking for your and this blogs community support. Thanks in advance

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Anonymous said...

Yes nehaji
I had pain i mid of chest bone.